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Way to Independence


Tirana May 2008 

Lulieta Rugji is a former institutionalized woman with physical disability who spent almost 20 years of her life in residential institutions. She was an excellent swimmer at her 20ties, and her brother too, but after both of them got muscular dystrophy and since than they lived in separated residential care settings.

After the communist regime collapse, many state-owned residential institutions deteriorated at the point that they were closed and Lulieta finished in the psychiatric hospital of Tirana although her diagnosis had nothing to do with the service of psychiatry.

After some years, the hospital authorities decided to discharge Lulieta from the hospital without designating a place for her where to go, so, one day, she found herself at the gate of hospital told to leave from there. Without family support that she lost some 20 years ago, and without knowing where to go, she felt desperate to death. Finding Lulieta on the road, Brigit, a maintenance hospital staff, who had finished her job shift, decided to take Lulieta for sometime in her ‘home’, which was one room only, and where Brigit was living with her son as a single mother. Lulieta lived in this room for another 10 years.  

Being out of institution, Lulieta got in contact with other people with disabilities; she heard that some of them had created their clubs, groups and organizations. She decided with a group of women and men with muscular dystrophy to create their organization called “Hope for Life”. Since then, she has been very active to voice the problems and barriers that society has put against people with disabilities. 

Through Share See project in Albania, Lulieta heard about other DPOs in the region. Her main surprise was the concept of Independent Living (IL), she heard during the training sessions of Share See. Through the exchange program of Share See, Lulieta went in Serbia to see how the philosophy of IL worked out at CIL Serbia. The Philosophy of IL means that disabled people are demanding to live like any body else, and t have same opportunity to make a choice, bring their own decisions on issues of their own lives, to control services that are provided for them and to take responsibility for the life they want to live. It also means that the society needs to provide conditions for disabled people to achieve IL, including support services, accessibly housing and transport, employment and sustainably income.  She meet there new friends, like Gordana  and Borivoje, who were leading the CIL and with whom she talked about IL and visited the center. 

While she came back to Albania, she spread the word to her friends about the IL and CIL. So, many DPOs asked to know more about IL and Share See organized a three days seminar on IL, in Tirana, where the trainers were Gordana and Borivoje. Being told and trained on IL by two PWD was another surprise to Albanian PWDs who until then have seen in front of them only trainers without disabilities.  These exchanges of ideas and experiences within Share See project, especially the contact with CIL, resulted in a great knowledge benefit for Lulieta and her DPO.

Since then, they have been working to spread out the idea of IL and lately they have set up the first CIL in Albania which will be a lab to experiment IL under local conditions. They do still have to learn a lot by CIL Serbia and other CILs experiences to provide themselves better chances to achieve independent living and live independently a life with dignity.


20.05.2008

All news:

Smederevo Coalition
Way to Independence
On Empowerment
Assistive Technologies
Press Conference
Wishes could come true
Seminar on reforms of social protection system
National Conference on Gender Equality
Mobility International Seeks Young Adults
Wal-Mart settles with applicant with disability [USA]
First Contestant with a Disability to Compete for Miss USA Title
INFO - CENTER
INACCESSIBILITY IS DISCRIMINATION!
UN Convention on PWDs rights
Conference on National strategy for Youth
Bits and pieces from Slovenija
Meeting with Bozidar Djelic
Focus group “Social services for PWDs“
SHARE SEE Grantee Training
Make a date
It's Okay to Stare... Then Engage a Question!
Sombor hosted workshop "sex, gender, disability"
Dancing Beyond Disability
Seminar HUMAN BEING AND ITS ENVIRONMENT
Project From Alternative to Standardisation
The regional group of experts in social service provision for people with disabilities
Youth Regional conference
Are we going to Europe?
Disability Guide to Disneyland Paris
POI Conference "From cause to the result: New approaches towards disability"
Open Letter to the Government, Members of National Assembly Competent Institutions and Policy Makers
Centre plan for disabled actors
An Autistic Dream
MEETING ON DISABILITY ISSUES IN SERBIA
A PARAGIDM SHIFT FROM 'CHARITY' TO 'RIGHTS AND DIGNITY'
Transport benefits
New Visa rules
Disabled rights champion honoured
Map of the World
Serbia is going to sign UN CRPD
WORKSHOP IN CAIRO
Seminar on Women with Disabilities
Adaptation of living environment for Persons with Disabilities
Program „Contact Organisations from the Civil Society”
Community Living for Disabled People Must Be Made a Priority
Celebrating 3rd December
Celebrating the 3rd December 2007
FILM FESTIVAL OBSERVING 3 DECEMBER
National Umbrella Organisation mark 3rd of December
ENDING OF SHARE SEE TRAINING PROGRAM
SHARE SEE IV MODULE – NISKA BANJA
IMPORTANT DAYS TO CELEBRATE
To Ministry of Labor and Social Policy
SHARE SEE training in Predejane
Recognising the Rights of Girls and Women with Disabilities
SHARE SEE IV MODULE IN SMEDEREVO
Creation the Local Plans of Actions in Disability Area
SHARE SEE IV MODULE – BELGRADE
TODAY IS THE DAY OF UN
Goodbye mouse hello voice controls
Elena Pecaric
Award
AWARENESS RISING
INTERNATIONAL DAY OF POVERTY REDUCTION
ADA RESTORATION ACTION CENTER
WHERE IS SERBIA
Disability Rights Treaty on Verge of Making History?
The Days of European Heritage in Belgrade, 20-30 of September
Council of Europe in Zagreb
Seoul Declaration
Virtual interpreter turns speech into sign language
Strasbourg Freedom Drive
UN Convention
Jagodina hosted the Third Table tennis tournament "Jagodina Trophy"
Hungary ratified UN Convention
Convention on Child Protection
UN convention on disability rights reaches milestone in signatories
IIIrd INTERNATIONAL SMILING CHILD FESTIVAL
Your dressing room on the Internet
Chosen home life a basic right for disabled people
SPORT RESULTS
What Can They Do?
III Module of trainings accomplished
SHARE SEE trainings
Project with young activists finished
Special EUROBAROMETER 263 “Discrimination in the European Union”
Seminar on Independent Living in Macedonia
It's Deaf Awareness Week 7-13 May
International Day of Families (15 May)
European Coalitions
Social services in South East Europe
Test on Autism
UN Headquarters, New York, NY
Presentation the UN Convention in Belgrade
Presentation of UN Convention on rights of persons with disabilities in Jagodina
SHARE SEE training in Belgrade
SHARE SEE training for Leskovac cluster
SHARE SEE Module II in Nis
The U.S. Embassy has a pleasure to invite you
SHARE SEE trainings Module II
I N T E R V I E W
GATEWAY
DYSGRAPHIA
UN Study of Violence Against Women Finds 50% of Disabled Women Experience Abuse
Launch of the Year of Equal Opportunities
Interesting events
Survey reveals social attitudes to disability
Homes that Meet Life’s Changing Needs
Awards for the best Campaign, PAs and users within the PASS project
Design for Everyone, Disabled or Not
STRATEGY
EDUCATION FOR MEMBERS OF POLITICAL PARTIES IN NOVI SAD ON BASIC FACTS ON DISABILITY ISSUES!
AWARDS COMPETITION
UN Convention adopted
Tribune on UN Convention in Novi Sad
Round table in Sarajevo
Evropean Union and Persons with Disabilities
Promotion of International Convention on Rights of Persons with Disabilities
PASS presentation in Bosnia and Herzegovina
International Day of Disabled Persons
World Congress on Disability
N. Korea puts disabled in camps
Universal Design
European Conference in St Petersburg
UN reward to Poland
SHARE SEE Training in Belgrade
Antidiscriminatory practice in Norway
SHARE SEE Training in Leskovac
UN Convention
DISABLED PEOPLE FROM SPANISH INDEPENDENT LIVING MOVEMENT HAVE CANCELLED THEIR LOCK IN
8th Session of the Ad Hoc Committee on the Rights and Dignity of Persons
UN AGREES ON DISABILITY TREATY TEXT
Geneva, 23 August 2006
SHARE SEE Training in Smederevo
SHARE SEE Training in Krusevac
UN Convention - 13 August 2006
Independent living hope
8th Conference of the European Union of Supported Employment
The implementation of Poverty Reduction Strategy goes on
Independent Living seminar in Tirana
E-ACCESSIBILITY TO BE THEME FOR INTERNATIONAL DAY
New CIL branch
CIL Sport Competition
United Nations takes a big step towards accessibility
Social service for PWDs in the Republic of Serbia
New EU diversity spot airing on MTV
Study visits in Brussels for delegates of disabled people organisations from the Western Balkans on 27-29 June 2006
Poverty
EDF Annual General Meeting
Brochure on CIL 10th Anniversary



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